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Support for relatives and parents of children with

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Permanent Winter - Albinism [150 icons] [16 Dec 2009|04:05pm]

theidolhands
Hello everybody, I wanted to share these icons that I made out of appreciation of the beauty and uniqueness of albinism. It was my small attempt to put out a positive energy on the subject.

✳ credit: theidolhands
✳ comments appreciated
no hotlinking
✳ icons aren't bases
* to view all created


ANIMALS

PEOPLE

different is also beautiful
Hugs & Kisses

Art4MD [27 Aug 2007|01:30pm]

ilovealandjm

(I needed to get word out about this wonderful organization started by my best friend.. The myspace link is at the bottom of the page.)

Mission Statement:

Art 4 Muscular Dystrophy is a non-profit organization founded and run by S.J. Creek. The purpose of A4MD is to raise money for the Muscular Dystrophy Association, an organization established for the cause of finding a cure for the 40 types of neuromuscular diseases out there. All profits gained from selling artwork on this site will be donated to the MDA, to help fight Muscular Dystrophy!

Sarah (founder) is a 19 year old girl from southern California. She was adopted inç1987, by her parents Michael & Susan. They decided to adopt because Susan was diagnosed with Myotonic Muscular Dystrophy, and they did not want to pass on the genes to their child. Sarah grew up in a family deeply affected by Myotonic Muscular Dystrophy. Her grandmother, two aunts, two cousins, uncle, and mother all had it, and she had to learn to cope with taking care of a loved one with a disability. Tragedy struck the family when her Uncle Bill passed away in 2001, due to complications of MD. However, this was just the beginning. In April of 2006, both of her cousins passed away when they came down with a case of Pneumonia. Finally, in October of 2006, Sarah's mother passed away for the same reason. Now, Sarah is determined to help find a cure for Muscular Dystrophy in any way possible.

Sarah is a sophomore at the Laguna College of Art & Design in Laguna Beach, California, and is majoring in illustration. She hopes to sell her art, and other people's artwork on this site, and donate that money directly to the MDA and any other well known and respected MD charities, helping them come closer to finding a cure!

If you are an artist, and wish to sell your art work for the cause, please e-mail Sarah @ Art4Md@aol.com





http://profile.myspace.com/index.cfm?fuseaction=user.viewprofile&friendid=231948096&MyToken=9d33c068-0877-4684-b370-28cea755f6a1

 

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Cross-posted like heck [07 Oct 2005|07:22pm]

tristissima
Hi everyone! My name is Chris and I am an instructional aide at PACE (Pacific Autism Center for Education; www.pacificautism.org). I would very much like to atart working with my student towards him writing poetry. I have seen autism netverse and some of the work there is AMAZING! However, being new to the field, I am unsure how exactly to go about it. I have talked somewhat with my teacher, but wanted other points of view and resources as well. If anyone has any or can point me to some, I will love you forever and name my firstborn after you :-)
More specifically, while I despise cinquains and diamantes and things of that nature as being boring, anti-creative, and actually turning people off of poetry at a young age, I just now thought that an emulation of a poem (basically making a Mad Lib out of it) might be effective to start him down the path. What do ya'll think?
Hugs & Kisses

Hi... [27 Aug 2005|12:05am]

jamba_addict
Your Name: Porsche
Age:22
Where you live: Los Angeles
Children's names/ages: Freddie, age 11. Dejon, age 5.
Tell us why you are here: just breezing around, looking for understanding people.
Please tell us the name of your child's condition: Freddie was born with an extremely rare condition called Miller Syndrome. It is characterized by many physical defects, no mental ones though. Some of them include shortened arms, cleft palate, severe cranofacial defects, hearing loss. Some of the children have been born without certain body parts, or the parts were only partially formed. My grandma adopted Freddie when he was very young, he was her foster child. The doctors didn't think he would live to see age 2, but with the wonderful, loving, attentive care my mom gave, here he is, turning 11 at the end of september. Dejon is a foster child. He is diagnosed with Autism/Mental Retardation. I was really looking for communities because of him. We are at the end of our rope with him. We love him to death, have had him for about three years. However, he is becoming increasingly violent, and impossible to manage. I don't know how much more of this i can take. Now, if i'm only 22 and feel like i can't handle it anymore, imagine how this feels to my grandmother who is over 70 years old. Sorry this is so long.
2 xo Hugs & Kisses

Hello there... [04 Jun 2005|11:34pm]

jordanclock
Hello. I have a sibling with a birth defect. My brother has Duchene's Muscular Dystrophy. He's been doing fairly well so far. They gave him until the age of 15 or so, but he's currently 23.
Hugs & Kisses

[31 May 2005|04:18pm]

poetic_eyez
Here is a website i made for Brendan www.geocities.com/p_to_tha_Ickles
Hugs & Kisses

[30 May 2005|08:35pm]

pleasenotice_me
Your Name Samantha White
Age 17
Where you live Maine
Children's names/ages my friend Emily
Tell us why you are here: to show that they are wonderful people too
Please tell us the name of your child's condition. cerebal palsey
Pic(s)I don't have any.. except yearbook ones. I'll take a picture of them later
Hugs & Kisses

[30 May 2005|06:51pm]

poetic_eyez

Your Name: Chrys
Age: 15
Where you live: Minnesota
Children's names/ages: Brendan -2 months
Tell us why you are here: To support families that have children with birth defects
Please tell us the name of your child's condition. My godson Brendan has cleft palate and lip
Pic(s)


 

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